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FeaturesAugust 23, 2015

One in a million - Graycen Beardslee

Thirteen-year-old Graycen Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays.

Laura Simon
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, uses glass cleaner to clean the inside of her hood, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, uses glass cleaner to clean the inside of her hood, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com A custom-made sign hangs in the stable at Graycen Beardslee's home, Friday, Aug. 7, 2015.
LAURA SIMON ~ lsimon@semissourian.com A custom-made sign hangs in the stable at Graycen Beardslee's home, Friday, Aug. 7, 2015.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, checks on her chickens and duck, Ming-Ming, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, checks on her chickens and duck, Ming-Ming, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, holds her duck, Ming-Ming, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, holds her duck, Ming-Ming, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, scoops hay for her horse, Red, as her mother, Kimberly Lambert-Beardslee holds the feeding bag open, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the barn have been covered with a special type of UV blocking plastic.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, scoops hay for her horse, Red, as her mother, Kimberly Lambert-Beardslee holds the feeding bag open, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the barn have been covered with a special type of UV blocking plastic.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, tends to some scrapes on her horse, Red, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the barn have been covered with a special type of UV blocking plastic.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, tends to some scrapes on her horse, Red, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the barn have been covered with a special type of UV blocking plastic.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, chats with classmates during their art class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, chats with classmates during their art class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, chats with classmates during their art class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, chats with classmates during their art class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, helps classmate Riley Green with his sketch book during their art class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, helps classmate Riley Green with his sketch book during their art class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, chats with classmates during their art class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, chats with classmates during their art class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, spends the last bit of English class reading after completing a writing test on the computer, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, spends the last bit of English class reading after completing a writing test on the computer, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, works to prepare her horse, Red, for the Sikeston Jaycee Bootheel Rodeo, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, works to prepare her horse, Red, for the Sikeston Jaycee Bootheel Rodeo, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, makes a stop at her locker between classes, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, makes a stop at her locker between classes, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, takes notes during her English class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, takes notes during her English class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, makes a stop at her locker between classes, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, makes a stop at her locker between classes, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, left, chats with classmate Samantha Coffee in the computer lab, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, left, chats with classmate Samantha Coffee in the computer lab, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee changes classrooms, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee changes classrooms, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, takes notes during her English class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, takes notes during her English class, Thursday, Aug. 20, 2015, at Kelly Middle School. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The windows in the school rooms that Graycen uses have all been tinted to block UV rays.
story image illustation
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, exits the horse pen after moving Red, her horse on the left, into it with Fancy, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, exits the horse pen after moving Red, her horse on the left, into it with Fancy, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, holds one of her baby chics, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, holds one of her baby chics, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, poses for a photo with her two horses, Red, left, and Fancy, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, poses for a photo with her two horses, Red, left, and Fancy, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, wrangles Fancy, right, and Red, for a photo, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, wrangles Fancy, right, and Red, for a photo, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, leads her horse, Red, out of the barn, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, leads her horse, Red, out of the barn, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, peers into the chicken coup at her house, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
LAURA SIMON ~ lsimon@semissourian.com Graycen Beardslee, 13, peers into the chicken coup at her house, Friday, Aug. 7, 2015. Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays. The special type of plastic on her hood blocks her face and neck from UV rays.
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Thirteen-year-old Graycen Beardslee has a condition commonly referred to as XP, a genetic disorder less commonly known as Xeroderma Pigmentosum, that disables her body from repairing skin damaged by ultraviolet rays.

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